TODAY!!!
MARK YOUR CALENDARS: The Lupus Foundation of America is proud to present live moderated chats, featuring the nation's leading experts in lupus. This is your opportunity to ask a question and learn more about lupus from thought leaders in a number of medical disciplines associated with lupus. READ MORE --->
Clinical Trials & Lupus
Guest Speaker: Mr. Ken Getz
Wednesday, September 12 - 3:00 p.m. EDT
ENJOY!
Showing posts with label lupus foundation of america. Show all posts
Showing posts with label lupus foundation of america. Show all posts
Wednesday, September 12, 2007
Wednesday, September 05, 2007
#163 -LUPUS FOUNDATION OF AMERICA... now available at your local blog!
The Lupus Foundation of America (LFA) is increasing its online presence.
As some of you already have noticed the LFA now provides live chats with lupus experts. The upcoming schedule is available at the link below:
and now... here's a real treat!
The LFA is now available in blog format:
Check out the latest entry:
For all of you lupus fashionistas and Project Runway fans, this looks like the place to be on October 18th!
Tuesday, September 04, 2007
#162 - THANK YOU!
THANK YOU!
Christine is just a few dollars shy of her lupus fundraising goal:
HERE IS THE DONATION LINK:
Lupus Alliance of America - Upstate New York Affiliate
Thank you so much to all of you who threw out a donation HOOZAH!
And it is not too late for a last minute HOOZAH for anyone who was still thinking of donating.
If you are not into the internet donation thing, that's cool.
Keep an eye open to your local community events. The Lupus Walk happens throughout the country.
The funding from these activities helps pay for the incredible educational and support programs offered by the Lupus Foundation of America:
Lupus Foundation of America
For many of us with lupus (and those waiting for a confirmed diagnosis) the LFA is the first stop in learning how to cope.
Christine is just a few dollars shy of her lupus fundraising goal:
HERE IS THE DONATION LINK:
Lupus Alliance of America - Upstate New York Affiliate
Thank you so much to all of you who threw out a donation HOOZAH!
And it is not too late for a last minute HOOZAH for anyone who was still thinking of donating.
If you are not into the internet donation thing, that's cool.
Keep an eye open to your local community events. The Lupus Walk happens throughout the country.
The funding from these activities helps pay for the incredible educational and support programs offered by the Lupus Foundation of America:
Lupus Foundation of America
For many of us with lupus (and those waiting for a confirmed diagnosis) the LFA is the first stop in learning how to cope.
Monday, August 27, 2007
#161 - A Special Request
My Neice, Christine, is going on her third year of volunteering to raise funds for lupus education and support via the Lupus Foundation of America.
Here is her statement:
Three years ago, I learned about Walk on the Wild Side for Lupus. I feel privileged to be able to help others by participating in this event, and I am grateful for all of the people who have sponsored me in the past. If you're reading this now, then I hope to be able to add you to the list of individuals who have offered their support.
Chances are you're familiar with lupus in some way; maybe you yourself are afflicted. I walk for those who cannot, for those people whose energy has been robbed by this disease, but above all, I walk with the hope that a cure can be found. Your donation will help fund research, education, and support for those affected by lupus. Thank you so very much!
HERE IS THE DONATION LINK:
... and here is her picture:
Isn't she a cutie?
(I just love to be the doting auntie.)
Anyway... if every subscriber to Life Beyond Lupus donated $5.00, well... that would go well beyond her goal... and we would all be able to jump up and down and say "Hoozah!" we did a good job!!
Just a thought...
HOOZAH! everybody!
Thursday, August 02, 2007
#157 - Lupus & Pregnancy
Can't read this? Go to www.lupus.org for information on our next Live Chat.
Next Lupus Live Chatwww.lupus.org
Wednesday, August 83:00 p.m. Eastern Daylight Time
Pregnancy and Lupus
Since lupus primarily affects young women of childbearing age, pregnancy often becomes a crucial question. While it is certainly possible for women with lupus to have children, pregnancy may not be easy. It is important to note that although many lupus pregnancies will be completely normal, all lupus pregnancies should be considered "high risk."
Pregnancy and Lupus will be the topic of the next Lupus Live Chat scheduled for Wednesday, August 8 on the Lupus Foundation of America website. The live chat begins at 3:00 p.m. Eastern Daylight time. Submit a question, then login on August 8 and view the Live Chat. Have a conflict? A transcript will be posted following the chat.
Guest Speaker: Dr. Rosalind Ramsey-Goldman [See the attached file]
About Our Guest Speaker:
Rosalind Ramsey-Goldman, M.D., D.Ph., is Professor of Medicine at the Fineberg School of Medicine at Northwestern University in Chicago. Her interests lie primarily in the clinical treatment of and research in understanding the natural history of systemic lupus erythematosus (SLE).
Specific interests of Dr. Ramsey-Goldman include the effects of lupus on pregnancy, the correlation between bone disease and immunosuppression, the epidemiology of lupus, genetics and lupus, lupus vascular disease, and a range of clinical trials related to the treatment of lupus and its debilitating symptoms.
Dr. Ramsey-Goldman’s goal is to improve the quality of life for lupus patients through her epidemiological, pregnancy, and drug studies.
Submit a question in advance
Log on to LFA Live Chat (bookmark this page for future reference)
Live Chat Begins:
Wednesday, August 8
3:00 p.m. Eastern2:00 p.m. Central1:00 p.m. MountainNoon Pacific
Learn more about pregnancy and lupus from the LFA website
Future Chats:
Wednesday, September 12 -- Clinical Trials
Ken Getz, Board Chair for the Center for Information and Study on Clinical Research Participation
Wednesday, October 10 -- Relationships & Lupus
Dr. Robert Phillips
Wednesday, November 14 -- Aging and Lupus
Dr. Ronenn Roubenoff, Sr. Director, Immunology Medical Research, Biogen Idec, Inc.
Wednesday, December 12 -- Teens and Lupus
Dr. Peter Chira, Stanford University School of Medicine
Transcripts of previous chats
Other Links of Interest:
Lupus Now Research Update
Read what is in the current issue of Lupus Now magazine
Become a Lupus e-Advocate
Sign up for our eNewsletter
Lupus Foundation of America, Inc.
2000 L Street, N.W., Suite 710
Washington, DC 20036
202-349-1155
info@lupus.org
Next Lupus Live Chatwww.lupus.org
Wednesday, August 83:00 p.m. Eastern Daylight Time
Pregnancy and Lupus
Since lupus primarily affects young women of childbearing age, pregnancy often becomes a crucial question. While it is certainly possible for women with lupus to have children, pregnancy may not be easy. It is important to note that although many lupus pregnancies will be completely normal, all lupus pregnancies should be considered "high risk."
Pregnancy and Lupus will be the topic of the next Lupus Live Chat scheduled for Wednesday, August 8 on the Lupus Foundation of America website. The live chat begins at 3:00 p.m. Eastern Daylight time. Submit a question, then login on August 8 and view the Live Chat. Have a conflict? A transcript will be posted following the chat.
Guest Speaker: Dr. Rosalind Ramsey-Goldman [See the attached file]
About Our Guest Speaker:
Rosalind Ramsey-Goldman, M.D., D.Ph., is Professor of Medicine at the Fineberg School of Medicine at Northwestern University in Chicago. Her interests lie primarily in the clinical treatment of and research in understanding the natural history of systemic lupus erythematosus (SLE).
Specific interests of Dr. Ramsey-Goldman include the effects of lupus on pregnancy, the correlation between bone disease and immunosuppression, the epidemiology of lupus, genetics and lupus, lupus vascular disease, and a range of clinical trials related to the treatment of lupus and its debilitating symptoms.
Dr. Ramsey-Goldman’s goal is to improve the quality of life for lupus patients through her epidemiological, pregnancy, and drug studies.
Submit a question in advance
Log on to LFA Live Chat (bookmark this page for future reference)
Live Chat Begins:
Wednesday, August 8
3:00 p.m. Eastern2:00 p.m. Central1:00 p.m. MountainNoon Pacific
Learn more about pregnancy and lupus from the LFA website
Future Chats:
Wednesday, September 12 -- Clinical Trials
Ken Getz, Board Chair for the Center for Information and Study on Clinical Research Participation
Wednesday, October 10 -- Relationships & Lupus
Dr. Robert Phillips
Wednesday, November 14 -- Aging and Lupus
Dr. Ronenn Roubenoff, Sr. Director, Immunology Medical Research, Biogen Idec, Inc.
Wednesday, December 12 -- Teens and Lupus
Dr. Peter Chira, Stanford University School of Medicine
Transcripts of previous chats
Other Links of Interest:
Lupus Now Research Update
Read what is in the current issue of Lupus Now magazine
Become a Lupus e-Advocate
Sign up for our eNewsletter
Lupus Foundation of America, Inc.
2000 L Street, N.W., Suite 710
Washington, DC 20036
202-349-1155
info@lupus.org
Monday, July 30, 2007
#156 - Lupus News Updates: July 29, 2007
07/29/07
News Updates from Yahoo:
Sunday, July 29, 2007 10:15 AM PDT
EurekAlert! Sun, 29 Jul 2007 10:08 AM PDTWINSTON-SALEM, N.C. – A gene discovered by scientists at Wake Forest University School of Medicine has been linked to lupus and related autoimmune diseases.
Lupus Foundation announces symposium
Muskogee Phoenix Sat, 28 Jul 2007 9:28 PM PDTThe Lupus Foundation of America, Oklahoma Chapter will hold a Lupus Symposium from 9 a.m. to 1 p.m. Saturday in the Wacoche Hall at Bacone College, 2299 Old Bacone Road, Muskogee. A working lunch will be provided. The event is free to the public.
Popular character had life of hardship
Sunday Life Sun, 29 Jul 2007 1:58 AM PDTHis wife Dolores had fought a long battle against the degenerative auto-immume disease Lupus. And as Robert mourned her loss, he remained upbeat and positive, putting on a brave face while he cared for his only child, Alison.
Thursday, May 17, 2007
#141 - Lupus and Financial Challenges
How many of you out there have had to cope with overwhelming financial problems due to the upheavals caused by lupus?
Some of us find our financial resources drained by the extra costs from co-pays to medication to needing to hire extra help.
And some of us are walking a tightrope of crashing into a financial crisis by the breakdown of a car, or an unexpected expense.
And then there are those of us who have been hit even harder.
Patient Advocate offers links to many resources available in your area:
Money Matters
http://www.patientadvocate.org/report.php
Please leave feedback if you use any of the services listed. I would like to keep the information up to date and highlight resources that are truly helpful.
Thanks!
Loretta Kelly, M.S.W.
Some of us find our financial resources drained by the extra costs from co-pays to medication to needing to hire extra help.
And some of us are walking a tightrope of crashing into a financial crisis by the breakdown of a car, or an unexpected expense.
And then there are those of us who have been hit even harder.
Patient Advocate offers links to many resources available in your area:
Money Matters
http://www.patientadvocate.org/report.php
Please leave feedback if you use any of the services listed. I would like to keep the information up to date and highlight resources that are truly helpful.
Thanks!
Loretta Kelly, M.S.W.
#140 - Jennifer Hudson at 4th Annual Lupus of America Awards Gala
This press release was provided by the Lupus Foundation of America at www.lupus.org:
If you would like to view this article with the photos, please visit here:
LUPUS FOUNDATION OF AMERICA
More Photos Here:
LUPUS FOUNDATION OF AMERICA
Jennifer Hudson Thrills Audience at 4th Annual Lupus Foundation of America Awards Gala
May 10, 2007
Actor Malcolm-Jamal Warner served as Master Of Ceremonies for Event to Bring National Attention and Resources for Lupus
LFA Announced $3.5 Million in Contributions for Lupus Research and Education Programs
Jennifer Hudson wows the crowd at LFA's Fourth Annual Gala
(Washington, DC) 2006 Academy Award Winner for Best Supporting Actress, Jennifer Hudson, used her four-octave range to give a breath-taking performance for 550 guests attending the Fourth Annual Lupus Foundation of America (LFA) Awards Gala on May 9 in Washington, DC. Marjorie S. Susman, Chair of the LFA Board of Directors, announced that this and preceding Galas have raised more than $3.5 million to support lupus research and education programs.
Actor Malcolm-Jamal Warner was the Master of Ceremonies for the Gala which honored U.S. Senator Richard Durbin, (D-IL); the Will and Jada Smith Family Foundation; Lisa Price, founder and CEO of Carol’s Daughter Cosmetics; and H. Thomas Watkins, President & CEO of Human Genome Sciences, for their efforts to bring national attention and resources to lupus, a devastating and life-threatening disease affecting 1.5 million Americans and five million people worldwide.
Dr. Gary Gilkeson, Chair of the LFA Medical-Scientific Advisory Council, unveiled a portrait of the late Dr. Philip Whitcome, a distinguished molecular biologist and highly successful businessman, who bequeathed $2.5 million to the LFA in memory of his wife, Carla, who passed away from complications of lupus. Dr. Whitcome’s mother, Margaret, participated in the unveiling.
Malcolm-Jamal Warner is joined by Tomiko Fraser Hines
Among the guests were Lauren Nelson, Miss America 2007; Shilah Phillips, Miss Texas 2006 and First Runner-up for the Miss America 2007 pageant; Dr. Sheila Johnson, President and Managing Partner of the WNBA's Washington Mystics; and LFA spokespersons Tomiko Fraser Hines, actress, Maybelline spokesperson and International Ford Agency model; Mercedes Yvette, 2004 Runner-up, America’s Next Top Model, and Kelly Jean Drury, actress and model who appeared on General Hospital. Actors Will Smith and Jada Pinkett Smith accepted their award through a videotaped presentation.
Congressman John Dingell (D-MI) and Debbie Dingell, and Senator Richard Shelby (R-AL) and Dr. Annette Shelby were the 2007 Honorary Chairs. Senator Robert Bennett (R-UT), Congressman Kendrick Meek (D-FL) and Leslie Meek, Esq. were the Honorary Co-Chairs.
Lupus is a chronic disease in which the immune system attacks the body’s own tissue, causing disabling pain and damage to organs, such as the heart, lungs, kidneys and brain.
The Lupus Foundation of America is the nation’s leading nonprofit health agency dedicated to finding the causes and cure for lupus through programs of research, education and patient support.
If you would like to view this article with the photos, please visit here:
LUPUS FOUNDATION OF AMERICA
More Photos Here:
LUPUS FOUNDATION OF AMERICA
Jennifer Hudson Thrills Audience at 4th Annual Lupus Foundation of America Awards Gala
May 10, 2007
Actor Malcolm-Jamal Warner served as Master Of Ceremonies for Event to Bring National Attention and Resources for Lupus
LFA Announced $3.5 Million in Contributions for Lupus Research and Education Programs
Jennifer Hudson wows the crowd at LFA's Fourth Annual Gala
(Washington, DC) 2006 Academy Award Winner for Best Supporting Actress, Jennifer Hudson, used her four-octave range to give a breath-taking performance for 550 guests attending the Fourth Annual Lupus Foundation of America (LFA) Awards Gala on May 9 in Washington, DC. Marjorie S. Susman, Chair of the LFA Board of Directors, announced that this and preceding Galas have raised more than $3.5 million to support lupus research and education programs.
Actor Malcolm-Jamal Warner was the Master of Ceremonies for the Gala which honored U.S. Senator Richard Durbin, (D-IL); the Will and Jada Smith Family Foundation; Lisa Price, founder and CEO of Carol’s Daughter Cosmetics; and H. Thomas Watkins, President & CEO of Human Genome Sciences, for their efforts to bring national attention and resources to lupus, a devastating and life-threatening disease affecting 1.5 million Americans and five million people worldwide.
Dr. Gary Gilkeson, Chair of the LFA Medical-Scientific Advisory Council, unveiled a portrait of the late Dr. Philip Whitcome, a distinguished molecular biologist and highly successful businessman, who bequeathed $2.5 million to the LFA in memory of his wife, Carla, who passed away from complications of lupus. Dr. Whitcome’s mother, Margaret, participated in the unveiling.
Malcolm-Jamal Warner is joined by Tomiko Fraser Hines
Among the guests were Lauren Nelson, Miss America 2007; Shilah Phillips, Miss Texas 2006 and First Runner-up for the Miss America 2007 pageant; Dr. Sheila Johnson, President and Managing Partner of the WNBA's Washington Mystics; and LFA spokespersons Tomiko Fraser Hines, actress, Maybelline spokesperson and International Ford Agency model; Mercedes Yvette, 2004 Runner-up, America’s Next Top Model, and Kelly Jean Drury, actress and model who appeared on General Hospital. Actors Will Smith and Jada Pinkett Smith accepted their award through a videotaped presentation.
Congressman John Dingell (D-MI) and Debbie Dingell, and Senator Richard Shelby (R-AL) and Dr. Annette Shelby were the 2007 Honorary Chairs. Senator Robert Bennett (R-UT), Congressman Kendrick Meek (D-FL) and Leslie Meek, Esq. were the Honorary Co-Chairs.
Lupus is a chronic disease in which the immune system attacks the body’s own tissue, causing disabling pain and damage to organs, such as the heart, lungs, kidneys and brain.
The Lupus Foundation of America is the nation’s leading nonprofit health agency dedicated to finding the causes and cure for lupus through programs of research, education and patient support.
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