Very sad news today. One of the younger members of our online lupus community passed on.
Here is the letter from her father:
To all Vals Pals on aol message board.
I am Valarie's father and while clearing out all kinds of un-subscribed e-mails that still keep coming I noticed one from Missysworld. Now that I know where you all are I needed to come here and tell you that Valarie lost her 4 1/2 year battle with Lupus on Monday April 10, 2006, around 8:15 that evening.
Her passing, came about very unexpectedly after a mere five day stay in the hospital. Doctors were discussing her good lab reports and positive response to treatment with hopes of discharge on Mon or Tues. On Sunday she appeared to go into some type of pulmonary distress and cardiac arrest. After she was revived in her room during a Code Blue, she was taken to Intensive Care until she could no longer fight the good fight and her lungs and heart gave out approx 24 hours later. We laid her to final peaceful rest on Saturday, April 15, 2006, in the same section of the cemetery as her sister. They are together once again. May God bless you all and give you all the strength and healing power you need to live as normal a life as you can. I hope for you all that your medical professiopnals are up to date with all the latest findings and treatments that you will need to survive. Valarie's doctor's I'm affraid were not up to speed and missed numerous red flags that should have signaled new and aggressive treatment. As schooled as she was about her disease, her doctor's were not. We are waiting for the autopsy report to see just what happened. I, with Vals knowledge to educate me, belive it was Lupus Nephritis. But we don't know right now. Valarie found a medical paper online about SLE and Lupus Nephritis. I'm sure she would have passed it on if she had had enough time left to do so. In an e-mail to Missy I attached a copy, hopefully if you are interested she will pass it along to you all. Thanks for being there for my darling daughter and giving her support during her suffering. Again God Bless you all.............Joseph H.
'Survivors are part turtle, we are part potato bug, we know enough to go fetal, 'til it's still up above'--Ani DiFranco--
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