Hi everyone!
Links are now being added to my new website:
LIFE BEYOND LUPUS
You can add your URL address here:
ADD YOUR LINKS to lifebeyondlupus.com
I hope to see lots of my online buddies there!
If you do not have your own site, but you have some terrific information to share…
PLEASE JOIN IN!
As I get things up and running, I will be featuring many of the wonderful sites and blogs that you folks have produced.
PLEASE NOTE: Links deemed inappropriate by this author and/or spamming will be permanently blocked from this site.
Monday, July 30, 2007
#156 - Lupus News Updates: July 29, 2007
07/29/07
News Updates from Yahoo:
Sunday, July 29, 2007 10:15 AM PDT
EurekAlert! Sun, 29 Jul 2007 10:08 AM PDTWINSTON-SALEM, N.C. – A gene discovered by scientists at Wake Forest University School of Medicine has been linked to lupus and related autoimmune diseases.
Lupus Foundation announces symposium
Muskogee Phoenix Sat, 28 Jul 2007 9:28 PM PDTThe Lupus Foundation of America, Oklahoma Chapter will hold a Lupus Symposium from 9 a.m. to 1 p.m. Saturday in the Wacoche Hall at Bacone College, 2299 Old Bacone Road, Muskogee. A working lunch will be provided. The event is free to the public.
Popular character had life of hardship
Sunday Life Sun, 29 Jul 2007 1:58 AM PDTHis wife Dolores had fought a long battle against the degenerative auto-immume disease Lupus. And as Robert mourned her loss, he remained upbeat and positive, putting on a brave face while he cared for his only child, Alison.
Monday, July 16, 2007
#155 - REQUEST: Adoption & Lupus
Back from vacation!
I'll be posting more on that later...
but, I just wanted to send a call out to everyone.
I received a request for information for prospective adoptive parents who have lupus.
Any tidbit will surely help!
I am trying to write up information about lupus and fertility for the new website (coming this September).
Writing about lupus and adoption is DIFFICULT.
Lupus directly impacts access to some international adoptions.
We adopted our child before I received a confirmed lupus diagnosis. We did not even suspect that I had an autoimmune disease at the time of the home studies.
So send a call out and, hopefully we can learn some more from other lupus patients.
Much thanks!
Monday, July 02, 2007
#154 - Summer Vacation Update
No, I have not slipped off of the planet.
:)
I have been working diligently on Life Beyond Lupus... THE WEBSITE!
Tada!
Sneak peeks will be available as soon as I am not too embarrassed by what I have on there.
Little Bear is home all day now that school is on summer break.
So, I am an extremely exhausted lupie Mommy.
This summer has already been the BEST since I can't remember when.
My medications have been adjusted so I can get more exercise. My pain medication dosage has been increased for 30 days while I increase my activity level. The exercise helps relieve the fibromyalfia pain, and of course... I just feel better overall by being able to move about.
My Effexor dosage was also increased. We are seeing if this will help balance out the fibromyalgia problems that have reared up over the past several months.
Gosh... my life would be so dull if I didn't have to play drug hockey everyday...
NOT!
So, Little Bear and I have moved into the town park. We have found six dragonflies, a very loud bullfrog, minnows, way too many bugs, and a baby sparrow.
Life is good.
I am also enjoying the friendships that are developing between Little Bear and the neighbor kids.
I love the screeching shouts of joy and mayhem.
Something that can be deeply appreciated when you spend most of your time alone.
Anyway...
That's it.
I should have the website ready for September, God willing.
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