CHECK THE FOLLOWING LISTINGS FOR A LOCATION NEAR YOU:
MichaelMoore.com : SiCKO : About the Film
Friday, June 22, 2007
Thursday, June 07, 2007
#152 - Lupus Chat Schedule
OUR LUPUS CHAT SCHEDULE
Sunday
Lupus Discussion Chat
8:00 PM EST
7:00 PM
CST6:00 PM
MST 5:00 PM
PST SLE HLTH Marty
Room: AOL Lupus Chat Room
Monday
Lupus & Your Life Discussion Chat
(Two hour chat)
8:00 PM EST
7:00 PM CST
6:00 PM MST
5:00 PM PST
SLE HLTH Rdwolf
Room: AOL Lupus Chat Room
Tuesday
Let's Get Together Lupus Chat
10:00 PM EST
9:00 PM CST
8:00 PM MST
7:00 PM PST
Temporarily Unhosted Chat
Room: AOL Lupus Chat Room
Temporarily Unhosted Chat
Room: AOL Lupus Chat Room
Wednesday
Late Night Lupus Chat
11:00 PM EST
10:00 PM CST
9:00 PM MST
8:00 PM PS
T SLE HLTH Marty
Room: AOL Lupus Chat Room
Thursday
Lupus Fun Night Chat
7:00 PM EST
6:00 PM CST
5:00 PM MST
4:00 PM PST
HST HLTH ANNEY AND HST HLTH MICHELE
Room: AOL Lupus Chat Room
HST HLTH ANNEY AND HST HLTH MICHELE
Room: AOL Lupus Chat Room
Life Beyond Lupus Book Store is now open. I have handpicked selections that I hope you enjoy. TODAY'S FEATURE: People with Lupus:
Life Beyond Lupus - PEOPLE with Lupus
Life Beyond Lupus - PEOPLE with Lupus
Tuesday, June 05, 2007
#151 - Special on Oprah Today, June 5th
Check your local listings.
Filmmaker, Michael Moore, will be featured on Oprah's show today.
As some of you may know, I have been following Mr. Moore's work on his latest documentary, SICKO for over one year now.
Last year I had shared with my readers that he was interviewing people who have been having problems with the US healthcare system.
I had the privilege to preview snippets of SICKO at the Toronto International Film Festival this past autumn and listen to Mr. Moore talk about his work in trying to draw attention to the need for healthcare reform in the US.
He actually had to go undercover to film this documentary.
When the insurance companies caught wind that he was making this film, they denied health insurance coverage to all of his employees! He couldn't go on with the work until he could get coverage for his workers... he mentioned that an anonymous helper was footing the bill.
I know people have some strong opinons about Michael Moore, but just so you know... he doesn't just go tromping in, getting people's stories and then abandon them.
He follows up, makes sure they get the help they need and establishes networks to keep the work going.
And... in person he is VERY SHY.
He is not the same guy you see on film when he is pushing someone who has been abusing their power.
And, he is humble about the work... completely not what I expected.
The guy is truly an advocate... and for those of us so dependent on the healthcare system, he is on our side.
So consider taking a peek at Oprah today to see what his film is about.
Sicko opens to general audiences on June 29th.
Monday, June 04, 2007
#150 - Oprah Makes Health Care #1 Priority This Year
Documentary filmmaker, Michael Moore, will be featured tomorrow (Tuesday June 5th) on Oprah's show. Here is the update I received:
Michael Moore on Oprah Tuesday
Michael Moore will appear on Oprah tomorrow, Tuesday, June 5, and will present, for the first time on television, scenes from his new film, "Sicko." Oprah will interview Michael about the movie and the attention it's receiving before its release (opening day everywhere is June 29). The theme of Oprah's show is the one film you must see this summer -- "Sicko" -- and the one book you must read (Cormac McCarthy's "The Road"). Oprah loved Michael's film and wants to make health care for all one of her main missions this year.
So set your recorders for Oprah tomorrow, Tuesday!
-------------------------------------------------------------------------------------
If you would like to learn more about Michael Moore's new film check out the link below:
Welcome to MichaelMoore.com
His newest film, Sicko, takes on the American health care system. It will open to general audiences on June 29th. Mark your calendars... this film is for all of us!
Michael Moore on Oprah Tuesday
Michael Moore will appear on Oprah tomorrow, Tuesday, June 5, and will present, for the first time on television, scenes from his new film, "Sicko." Oprah will interview Michael about the movie and the attention it's receiving before its release (opening day everywhere is June 29). The theme of Oprah's show is the one film you must see this summer -- "Sicko" -- and the one book you must read (Cormac McCarthy's "The Road"). Oprah loved Michael's film and wants to make health care for all one of her main missions this year.
So set your recorders for Oprah tomorrow, Tuesday!
-------------------------------------------------------------------------------------
If you would like to learn more about Michael Moore's new film check out the link below:
Welcome to MichaelMoore.com
His newest film, Sicko, takes on the American health care system. It will open to general audiences on June 29th. Mark your calendars... this film is for all of us!
Sunday, June 03, 2007
#149 - Research Update for CNS Lupus
Here is a press release regarding the lupus cognitive study I have signed up for:
Researchers Track Basis of Cognitive Deficits in Lupus
Release Date
05/09/06
Contact
Lois Baker
ljbaker@buffalo.edu
716-645-5000 ext 1417
Email Article
Print Article
Subscribe to News Like This
BUFFALO, N.Y. -- Neuroscientists in the Department of Neurology/Jacobs Neurological Institute at the University at Buffalo have received $1.2 million from the National Institute of Neurological Disorders and Stroke to link the cognitive deficits in working memory frequently observed in persons with lupus to specific electrical activity and anatomical changes in the brain.
The researchers will take a multifaceted approach that never has been used to study this disease: magnetic resonance imaging (MRI) scans of the brain, neuropsychological tests and a process called event-related brain potentials, which measures processing speed and the efficiency of neurons.
The study will involve persons with lupus, referred to in medical circles as systemic lupus erythematosus, or SLE, who do not have overt central nervous system manifestations of the disease, such as stroke, seizure or psychosis. Researchers will compare this "non-CNS SLE" group with a healthy control group.
"Since the late 1980s, there has been considerable interest in the cognitive deficits associated with systemic lupus erythematosus," said Janet L. Shucard, Ph.D., UB assistant professor of neurology and lead researcher on the study.
"As many as 66 to 80 percent of all individuals with SLE have been reported to exhibit cognitive deficits. Recent studies suggest that the most frequently observed cognitive deficits are in the areas of attention, speed of information processing, learning (encoding) and working memory," said Shucard.
Working memory is a system for temporarily storing and managing the information required to carry out complex cognitive tasks such as learning, reasoning and comprehension.
"These impairments in working memory and processing speed, which are often subtle, can significantly disrupt an individual's ability to carry out activities of daily living," Shucard said.
Lupus is an autoimmune disease that currently affects 1 out of 2,000 Americans, according to the National Institute of Allergy and Infectious Disease. It occurs much more frequently in women than men. Young African-American women are especially at risk, with an estimated prevalence of the disease in this group of 1 in 250.
The researchers will use MRI scans to determine brain-tissue injury, and employ event-related brain potentials to measure processing speed and the efficiency of neurons during working-memory tasks in lupus patients and controls. Neuropsychological tests will determine the pattern of cognitive deficits in persons with lupus.
"By studying a non-CNS SLE group and a healthy control group with these methods, we will be able to address theoretical questions pertaining to the neurobiological basis of deficits in attention and working memory that characterize many SLE patients," Shucard noted.
David Shucard, Ph.D., professor of neurology, is the co-principal investigator on the project. Robert Zivadinov, M.D., Ph.D., and Ralph Benedict, Ph.D., from the UB Department of Neurology, and Julian Ambrose, M.D., from the UB Department of Medicine, both in the UB School of Medicine and Biomedical Sciences, along with James Donnelly, Ph.D., from the Department of Counseling, School and Educational Psychology, UB Graduate School of Education, are co-investigators.
The University at Buffalo is a premier research-intensive public university, the largest and most comprehensive campus in the State University of New York.
I have gone through the phone interview (about 30 minutes or less) . I will be sent release forms. From there my records and interview will be reviewed by an MD on the research team. Finally, if I meet the criteria for this study, I will participate in about 10 hours of studies. There is a stipend for participation.
If you live in the Western New York region and are interested, there is contact information available at the beginning of the above news release.
Researchers Track Basis of Cognitive Deficits in Lupus
Release Date
05/09/06
Contact
Lois Baker
ljbaker@buffalo.edu
716-645-5000 ext 1417
Email Article
Print Article
Subscribe to News Like This
BUFFALO, N.Y. -- Neuroscientists in the Department of Neurology/Jacobs Neurological Institute at the University at Buffalo have received $1.2 million from the National Institute of Neurological Disorders and Stroke to link the cognitive deficits in working memory frequently observed in persons with lupus to specific electrical activity and anatomical changes in the brain.
The researchers will take a multifaceted approach that never has been used to study this disease: magnetic resonance imaging (MRI) scans of the brain, neuropsychological tests and a process called event-related brain potentials, which measures processing speed and the efficiency of neurons.
The study will involve persons with lupus, referred to in medical circles as systemic lupus erythematosus, or SLE, who do not have overt central nervous system manifestations of the disease, such as stroke, seizure or psychosis. Researchers will compare this "non-CNS SLE" group with a healthy control group.
"Since the late 1980s, there has been considerable interest in the cognitive deficits associated with systemic lupus erythematosus," said Janet L. Shucard, Ph.D., UB assistant professor of neurology and lead researcher on the study.
"As many as 66 to 80 percent of all individuals with SLE have been reported to exhibit cognitive deficits. Recent studies suggest that the most frequently observed cognitive deficits are in the areas of attention, speed of information processing, learning (encoding) and working memory," said Shucard.
Working memory is a system for temporarily storing and managing the information required to carry out complex cognitive tasks such as learning, reasoning and comprehension.
"These impairments in working memory and processing speed, which are often subtle, can significantly disrupt an individual's ability to carry out activities of daily living," Shucard said.
Lupus is an autoimmune disease that currently affects 1 out of 2,000 Americans, according to the National Institute of Allergy and Infectious Disease. It occurs much more frequently in women than men. Young African-American women are especially at risk, with an estimated prevalence of the disease in this group of 1 in 250.
The researchers will use MRI scans to determine brain-tissue injury, and employ event-related brain potentials to measure processing speed and the efficiency of neurons during working-memory tasks in lupus patients and controls. Neuropsychological tests will determine the pattern of cognitive deficits in persons with lupus.
"By studying a non-CNS SLE group and a healthy control group with these methods, we will be able to address theoretical questions pertaining to the neurobiological basis of deficits in attention and working memory that characterize many SLE patients," Shucard noted.
David Shucard, Ph.D., professor of neurology, is the co-principal investigator on the project. Robert Zivadinov, M.D., Ph.D., and Ralph Benedict, Ph.D., from the UB Department of Neurology, and Julian Ambrose, M.D., from the UB Department of Medicine, both in the UB School of Medicine and Biomedical Sciences, along with James Donnelly, Ph.D., from the Department of Counseling, School and Educational Psychology, UB Graduate School of Education, are co-investigators.
The University at Buffalo is a premier research-intensive public university, the largest and most comprehensive campus in the State University of New York.
I have gone through the phone interview (about 30 minutes or less) . I will be sent release forms. From there my records and interview will be reviewed by an MD on the research team. Finally, if I meet the criteria for this study, I will participate in about 10 hours of studies. There is a stipend for participation.
If you live in the Western New York region and are interested, there is contact information available at the beginning of the above news release.
Friday, June 01, 2007
#148 - Live Lupus Chat, June 6th, Dr. Al Herzog, Emotional Challenges
This is a message I received from the Lupus Foundation of America:
Next Lupus Live Chat www.lupus.org
Wednesday, June 63:00 p.m. Eastern Daylight Time
Dealing with the EmotionalChallenges of Lupus
A diagnosis of lupus is almost certain to cause emotional turmoil and distress. Each person’s emotional response to lupus is different. It is estimated that half of the people with lupus experience some type of emotional problem because of their illness.
Feelings of confidence can quickly be shattered. Loss of self-esteem can be a serious problem leading to mood swings and depression. Emotions can range from anger, fear, frustration, resentment, bitterness, and denial. Family members may not understand or appreciate the emotional roller coaster that people with lupus experience, often causing those with the disease to feel isolated and alone.
These emotional challenges will be the topic of the next Lupus Live Chat scheduled for Wednesday, June 6 on the Lupus Foundation of America website. The live chat begins at 3:00 p.m. Eastern Daylight time.
Guest Speaker: Dr. Al Herzog [See the attached file]
About Our Guest Speaker: Dr. Al Herzog is Medical Director, Professional Programs at the Institute of Living, Harford Hospital in Hartford, Connecticut. He is a psychiatrist and a past speaker of the American Psychiatric Association. Dr. Herzog has written on a wide variety of medical topics ranging from psychiatry to organized medicine and the application of complexity science to the practice of medicine.
Submit a question in advance
Log on to LFA Live Chat (bookmark this page for future reference)
Live Chat Begins:Wednesday, June 6
3:00 p.m. Eastern2:00 p.m. Central1:00 p.m. MountainNoon Pacific
Future Chats:
July 11 - Ethnicity & Lupus
September 12 - Clinical Trials
Transcripts of previous chats
Next Lupus Live Chat www.lupus.org
Wednesday, June 63:00 p.m. Eastern Daylight Time
Dealing with the EmotionalChallenges of Lupus
A diagnosis of lupus is almost certain to cause emotional turmoil and distress. Each person’s emotional response to lupus is different. It is estimated that half of the people with lupus experience some type of emotional problem because of their illness.
Feelings of confidence can quickly be shattered. Loss of self-esteem can be a serious problem leading to mood swings and depression. Emotions can range from anger, fear, frustration, resentment, bitterness, and denial. Family members may not understand or appreciate the emotional roller coaster that people with lupus experience, often causing those with the disease to feel isolated and alone.
These emotional challenges will be the topic of the next Lupus Live Chat scheduled for Wednesday, June 6 on the Lupus Foundation of America website. The live chat begins at 3:00 p.m. Eastern Daylight time.
Guest Speaker: Dr. Al Herzog [See the attached file]
About Our Guest Speaker: Dr. Al Herzog is Medical Director, Professional Programs at the Institute of Living, Harford Hospital in Hartford, Connecticut. He is a psychiatrist and a past speaker of the American Psychiatric Association. Dr. Herzog has written on a wide variety of medical topics ranging from psychiatry to organized medicine and the application of complexity science to the practice of medicine.
Submit a question in advance
Log on to LFA Live Chat (bookmark this page for future reference)
Live Chat Begins:Wednesday, June 6
3:00 p.m. Eastern2:00 p.m. Central1:00 p.m. MountainNoon Pacific
Future Chats:
July 11 - Ethnicity & Lupus
September 12 - Clinical Trials
Transcripts of previous chats
#147 - New Hope for Diagnosing and Managing Lupus
Having lupus means looking ahead to a life full of unpredictability. We don't know if our health status is going to stay the same, get btter, or get worse.
Researchers are trying to find a way to test lupus patients in order to give each individual patient a more firm prognosis of what to expect.
Scientists are now coming close to being able to locate biomarkers that will help predict the course of lupus.
Here is an article from the Lupus Research Institute:
" In the year 2007, a life with the chronic and unpredictable multi- system disease that is lupus remains rife with uncertainty. 'Will I get sicker?' the person with lupus asks. 'Will my kidneys start to fail? My heart? Will my siblings or children get lupus? Will a new drug work for me? Will I ever feel better?"
READ MORE HERE ----> Lupus Research Institute
Researchers are trying to find a way to test lupus patients in order to give each individual patient a more firm prognosis of what to expect.
Scientists are now coming close to being able to locate biomarkers that will help predict the course of lupus.
Here is an article from the Lupus Research Institute:
" In the year 2007, a life with the chronic and unpredictable multi- system disease that is lupus remains rife with uncertainty. 'Will I get sicker?' the person with lupus asks. 'Will my kidneys start to fail? My heart? Will my siblings or children get lupus? Will a new drug work for me? Will I ever feel better?"
READ MORE HERE ----> Lupus Research Institute
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